The periodic checkup readings to a lupus patient, especially for a Lupus Nephritis patient, is never short of a roller coaster ride where randomness is the only constant. Continue reading “My readings are back to normal again!”
(Note: The picture above is not Josie’s kid)
When I first met Josie (not her real name), it was during a lupus support group forum. The topic for the forum was about Lupus Nephritis medications. A young lady raised her hand, and spoke of her 6-year-old daughter’s conditions. The girl has been diagnosed with lupus nephritis class IV, and is currently undergoing chemotherapy. The doctor mentioned that in the past it is a fatal disease. But now generally people could live with it up to 20 – 30 years.
“Do you mean she can only live up to 30s as she’s 6 now?” She sobbed.
That was almost eight months ago. That was the first time I met Josie.
The good news is.. I no longer have joint pains.
The bad news is.. Lupus is still attacking my kidneys.
I was tempted to put the title as ‘It is not getting any better.’ but I know better to beat myself down at this stage. After all it is supposed to be an experiment, is it not? Since there are different outcomes for experiments, the only reasonable thing to do at this point of time is to change the way how things are done.
The handover procrastination syndrome is a syndrome where one feels that it is impossible to handover their current tasks to the next person because of an utter sense of responsibility. You worry that you might be passing on unresolved problems, and therefore hope to minimise the hassle before handing over. Ironically this procrastination created even more stress to the person as there seems to be no escape from the piles of responsibilities that should have shifted place long ago.
- Setting up investment goals and systematically keeping money into low cost index fund accounts.
- Visualise a date and goal for early retirement
- Launched my blog
- Did my first anchoring for lead climbing
- Managed to finish 8 books during the year
- Lupus relapse
- Pissing off a main influencer
- Gaining weight
Spoiler alert: This is not a hospital bashing article.
The real place that taught me so much on acceptance. It taught me that I am no special snowflake. It taught me that everyone else’s lives are also important. It also taught me that if everyone is giving it a fight, why would someone else expect their fight to be more brutal than the others’?
I am wide awake again.
This happened when I had increased dosage of prednisone and sleeping two hours earlier like how it was when I first had lupus approximately two years ago. Instead of wasting time watching silly videos in bed, I figure maybe I should just write about how this could actually be a good thing.