As I grow older, I realised that in many situations, things were never as clear cut as what they seem to be when I was younger. These situations were not like whether you should choose coffee over tea, where it was just a matter of preference. These situations involve great pain in either party, where the cause of the pain was due to expectations, not where moral or ethics were involved. Continue reading “Why empathy is easy when you could afford to take a side”
I had many realisations after my recent hike at Mount Kinabalu. Continue reading “Inspiration is overrated”
Recently a friend asked me : Why are terminal cancer patients bitter if they said that they had no regrets in life? Continue reading “Salute to all caregivers out there”
I used to see the word chronic a lot before I have lupus. To me, chronic was synonymous to critical, serious, hard to treat, alien-spawning-out-of-a-body-part type of disease. When I started to have lupus, I learnt that lupus is also a ‘chronic disease’, so I looked up in the internet the definition of a chronic disease because it was simply too hard to accept that I might be a mutant. It turns out the definition that I understood previously was not so accurate after all.
Ah, hospitals. The curious place that us lupus patients just have to visit once a while, hopefully not to linger too long.
I used to jokingly tell my friends that I do not normally take medical leave, if I had to, it normally means I was so sick I need to be hospitalised. Who could have thought that I was right after all?
My body got its big break last year, and because of lupus and a 6cm ovarian cyst, I needed to be in the hospital almost a month, and checkups throughout the year. The last time I was in the hospital this long was when I was 8 years old and I had appendix. Continue reading “My curious hospital adventure”
I started this blog to document my life after I was diagnosed with Lupus Nephritis Stage IV, and hopefully could inspire new patients around the world to lead a normal life again. I recalled when I was first diagnosed, I was frantically searching information on the internet to give myself hope that I will be normal again, and what I saw was other lupus patients having worse symptoms, and the only direction that lupus could turn, is to worsen. The lupus patients in the ward next to my beds are suffering frequently, and whilst I did speak to some of them, I did not have time to digest what those conversations meant to me.
It took a while for me to accept my new friend, and the adjustments that I have to make in my life. It was also not easy to accept hospital bills raking up, and that these bills need to be paid instantaneously otherwise I would not be able to receive treatment. Continue reading “Can I actually inspire anyone?”
The Dark Knight (2008) was a soul shattering and nerve wrecking movie when I watched it in the cinema back then. The horror and havoc that the Joker has brought upon to Gotham city is incomprehensible and unexpectable. I recalled having my heart hung on a string from the bank robbery scene all the way until the end where batman escaped onto a highway on his batpod. Continue reading “5 things I learnt about work and lupus after re-watching The Dark Knight”