The good
The bad
Continue reading “The good and the bad – A reflection on 2017”
Spoiler alert: This is not a hospital bashing article.
Hospitals.
The real place that taught me so much on acceptance. It taught me that I am no special snowflake. It taught me that everyone else’s lives are also important. It also taught me that if everyone is giving it a fight, why would someone else expect their fight to be more brutal than the others’?
Continue reading “If you can survive the hospital, you can survive everything else”
I stumbled upon this when I was searching for nice jazz music which are not too experimental up to the point that it disrupts my thoughts when I read, and not too boring that it drives me straight to the dreamland, like the elevator jazz. So here it is.
Bebop, Swing and All that Jazz
I tried to find the bio of the musician, but I have no idea what part he plays in the composition and execution of the songs. It just says that he’s a ” multi-instrumentalist Australian musician fluent in free style, smooth, swing, bossa nova and funk fusion jazz genres.” (http://www.lewisluong.com/)
So does that mean he’s the one playing all the instruments in the album? Like the piano, sax, and drums? Was he using a synthesizer? No idea. If he was in a live band I should be able to find some live jazz gigs that his band has performed. But nope. Never seen one before. Anyway it is good stuff. Some alternative to all that Chrissy songs. Enjoy!
I am wide awake again.
This happened when I had increased dosage of prednisone and sleeping two hours earlier like how it was when I first had lupus approximately two years ago. Instead of wasting time watching silly videos in bed, I figure maybe I should just write about how this could actually be a good thing.
Continue reading “Insomnia: My good ol’ get-work-done-odd-hours pal”
(This is the Chinese version of the article, please find the English version under Inspirational story: Lupus and dialysis did not beat Sheryn* down )
许多人视洗肾为畏途，并且觉得如果需要进行洗肾将会是世界末日。
然而，对于许多慢性病患者来说，他们只能在死亡或洗肾之间选择，对他们而言，洗肾只对他们带来一些不便，却能令他们尽可能正常生活。
我很幸运能够采访Sheryn（不是她的真实姓名）关于她狼疮和洗肾的生活故事和心路历程。 Continue reading “史琳的狼疮故事 – 如果她能快乐地继续生活下去，我能有什么借口悲观”
After being quiet for almost 2 years, my lupus friend has made a comeback.
I had my quarterly checkup last week and my urine protein creatinine ratio has increased beyond the normal range. For the past two weeks I have also been feeling mild joint pain at the fingers, wrist, abdomen, arms, neck, ankle and sole. Not all parts painful at the same time, but an indication of lupus activity. My immune system is starting to act up again! Continue reading “How to deal with a lupus comeback – An experiment”
LUPUS 500 DAYS 