(Note: The picture above is not Josie’s kid)
When I first met Josie (not her real name), it was during a lupus support group forum. The topic for the forum was about Lupus Nephritis medications. A young lady raised her hand, and spoke of her 6-year-old daughter’s conditions. The girl has been diagnosed with lupus nephritis class IV, and is currently undergoing chemotherapy. The doctor mentioned that in the past it is a fatal disease. But now generally people could live with it up to 20 – 30 years.
“Do you mean she can only live up to 30s as she’s 6 now?” She sobbed.
That was almost eight months ago. That was the first time I met Josie.
Continue reading “Josie’s parenting journey of a 6-year-old kid with a critical illness”
LUPUS 500 DAYS 