The good news is.. I no longer have joint pains.
The bad news is.. Lupus is still attacking my kidneys.
I was tempted to put the title as ‘It is not getting any better.’ but I know better to beat myself down at this stage. After all it is supposed to be an experiment, is it not? Since there are different outcomes for experiments, the only reasonable thing to do at this point of time is to change the way how things are done.
My protein leakage is increasing from 112.8 to 191.1 when the normal range is <50. So what the doctor did was increased my medications. He said it might take months for the medication to take effect where the protein leakage might reduce.
There are two types of main medications to manage joint pain and suppress the immune system. The prednisone (steroids) manages the joint pain whereas the cellcept (mycophenolate mofetil) is a stronger form of immunosuppressant, to tame down the confused immune system army carrying out a siege at my kidneys.
Well what are my thoughts? (Apart from those self-defeating thoughts that lingered around for an hour, during my drive back from the hospital)
The obvious next step was to do something differently, in hopes that the results will improve in a months’ time. So I have been doing the stress-free routine for the past three weeks, and maybe it was not good enough. My next first step is to manage my diet. I was looking at my daily food:
Carrot, apples, cucumber juice
Oats with an egg and cheese (high protein)
Almond nuts (high protein)
Meat 150g (chicken/fish/beef/pork) (high protein)
broccoli (high protein)
I realised that I might have been taking up too much protein daily. Too much protein causes a strain to the kidneys, having to do more filtering work while under attack.
Not a sensible decision I suppose.
So I am going to cutdown on the meat. I will only eat meat on alternate days. I am going to start an alternate vegan day routine and see where this heads to. Also to reduce intake of salt. Which means the processed food must go. Goodbye Cheese!
I got in touch with a few lupus nephritis patients who have gone through this. Some took almost a year to get their readings down to normal again. Their advice? Listen to the doctor and take care of your diet. Be positive about it. I am glad that someone who has been through this told me that it does indeed take time.
I am seeing the doctor again in another one months’ time. Sometimes I wondered if I should see the doctor so frequently if the medication is going to take time. Does that not increase my anxiety since I would only be seeing the process when my body is still recovering from all that scarring?
We shall see how it goes. At least I do not think I will be so worried if I see that the readings increase further. At the mean time, I will just heed my fellow lupus comrades’ advice to stay positive, eat right and stay active. Stay out of the sun. Relax and do not stress over anything.